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Real members of MyMelanomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

My Doctor Has Ordered A BRAF Test On My Tumor. Can Someone Give Me More Information About This Please

By A MyMelanomaTeam Member 13 answers

Do You Follow A Specific Diet To Help With Melanoma?

By A MyMelanomaTeam Member 21 answers

Are You Frustrated With Finding Effective Treatments For Melanoma?

By A MyMelanomaTeam Member 14 answers

Are You Or A Loved One With Melanoma A Military Veteran?

By A MyMelanomaTeam Member 3 answers
128 questions

Does Anyone Have Experience With Braftovi And Mektovi After Opdualag?

A MyMelanomaTeam Member asked a question 💭
Union, KY

My husband (71) was diagnosed in stage IV about a year ago with all lymph nodes from neck to groin as cancerous plus brain mets. He took 9 immunotherapy treatments and then 5 SRS sessions. His doctor has now stopped the immunotherapy and started him on Braftovi and Mektovi. We’re trying to understand what this means for his cancer journey. His last PET scan showed the tumors shrinking slightly in some area but also growing slightly in other areas. How likely is it that the targeted therapy will… read more

A MyMelanomaTeam Member

I'm sorry to hear about your husband's diagnosis. Here's some information based on my knowledge base:

Braftovi (Encorafenib) and Mektovi (Binimetinib)
- Braftovi is a kinase inhibitor that targets… read more

September 21

My Doctor Has Ordered A BRAF Test On My Tumor. Can Someone Give Me More Information About This Please

A MyMelanomaTeam Member asked a question 💭
Anoka, MN
A MyMelanomaTeam Member

Prayers to all that meed

September 30

How Long Does It Take Modular Melanoma To Mastesize

A MyMelanomaTeam Member asked a question 💭
Knoxville, TN
A MyMelanomaTeam Member

Nodular melanoma, a subtype of melanoma, can be more aggressive and has a higher risk of metastasis. According to my knowledge base, between 15 percent and 26 percent of people initially diagnosed… read more

September 14

I Have Upcoming Surgery On My Axillary Lymph Nodes. I Was Wondering What The Recovery Looks Like. Staying Mostly Positive.

A MyMelanomaTeam Member asked a question 💭
Los Angeles, CA

Stage 3 melanoma without known origins. Clean CT. Upcoming PET scan to rule out.

A MyMelanomaTeam Member

after onc was telling me i was looking good for months he later said latest petscan indicated more cancer in my abdomen....since it moved from armpit to abdomen it was then Stage 4 and as i like to… read more

October 15

Which Melanoma Symptom Surprised You The Most?

A MyMelanomaTeam Member asked a question 💭
San Francisco, CA
A MyMelanomaTeam Member

Yup, watch out for melanoma possibilities anywhere on you, or in you. None of mine were on my skin, or in my eyes, etc. I've had two tumors in my left brain and three in left lung. That's the only two… read more

September 10

What Sun Protection Methods Do You Use Daily? 🌞🧴

A MyMelanomaTeam Member asked a question 💭
San Francisco, CA

Share your favorite sunscreens, clothing, or routines to protect your skin. Your tips can help others find effective ways to protect themselves from the sun.

Comment below with your sun protection methods and let’s help each other stay safe! 💬

A MyMelanomaTeam Member

My protection is the roof and 4 walls!

November 5

Has Anyone Been On The Chemo Pill Called Temodar (temozolomide). If So, What Has Been The Benefit Vs. The Side Effects.

A MyMelanomaTeam Member asked a question 💭
Rumson, NJ

Metastatic Melanoma, brain, bone, lung, etc. Immuno did not work, have been on chemo duo pills for 8 months. Body cancer doing well but brain cancer is growing expediential. Already had a few GammaKnife treatments and brain surgery to remove a tumor to identify the type of cancer. Had melanoma 25 years ago, early stage but after diagnosed with MSA (multiple systems atrophy) all hell broke loose.
Thank you for any insight you can provide regarding what to expect from Temodar.

A MyMelanomaTeam Member

Temozolomide, also known as Temodar, is a chemotherapy drug available in oral capsule form. It is used to treat melanoma that has metastasized (spread to other parts of the body).

Benefits
-… read more

August 12

Kaytruda Infusions Are Making Me Loose My Hair...is Anyone Else Experiencing This Side Effect? I Need A Hat Or Wig It's So Bad....

A MyMelanomaTeam Member asked a question 💭
San Juan Capistrano, CA
A MyMelanomaTeam Member

Hi Nat, I took Odivo (similar to Keytruda) and I have experienced some hair loss, but not so much that I need a hat. I know that one of the side effects of immunotherapy is dry skin, and I wonder if… read more

August 4

What Are Your Top Tips For Dealing With Melanoma In The Heat?

A MyMelanomaTeam Member asked a question 💭
San Francisco, CA
A MyMelanomaTeam Member

All good thanks for asking have a great weekend

September 13

Just Told My Biopsy Is Melanoma In Situ And Kind Of Freaked Out.

A MyMelanomaTeam Member asked a question 💭

The said biopsy showed in situ at lateral border and have to have excision now. But I’m worried about the possibility that they say it’s not in situ but worse once they do the excision.

A MyMelanomaTeam Member

I was diagnosed in May of this year and I had such bad anxiety, that my doctor put me on Klonipin. It has helped immensely. I've had 5 sessions of immunotherapy and WLE. Now that I've gotten into a… read more

July 23
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