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Who Has Or Is Doing Immunotherapy With Ipi/nivo (OPDIVO/yervoy)? What Has Been Your Experience?

A MyMelanomaTeam Member asked a question 💭
Alexandria, VA
May 27
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A MyMelanomaTeam Member

I just finished. I did 2 cycles then had surgery to remove all remaining lymph nodes in my arm pit. Pathology showed the 2 treatments worked. There was scarring from the cancer but no more active cells. My side effects were minimal. Headache for 2 weeks. A little vertigo and my hands peeled. Surgey is a whole other issue. 4 weeks post op and I'm back on bed rest

August 21
A MyMelanomaTeam Member

I have Metastatic Melanoma. I discovered a lump under my right arm in my lymph node. It was 5cm. My brain scan was negative. My PET Scan showed just the mass in my right underarm. I started my infusions on 10/09/23 (ipilimumab (YERVOY) and nivolumab(OPDIVO). I had 4 infusions (one every 21 days for 4 months) of Yervoy and Opdivo. Then I began receiving just the Opdivo every 21 days to last for 2 years. When I had my first doctors appointment after 2nd infusion the mass had significantly shrunk. My mass has stayed very small.
My PET Scans have stayed relatively clear with no new signs of cancer.
The infusions have been fairly easy except for a little tiredness.

It is strange that I have never had Melanoma prior.

August 10 (edited)
A MyMelanomaTeam Member

I've had infusions...very minimal side effects so far

July 27
A MyMelanomaTeam Member

I did 4 treatments until i came down with Severe Colitis and was hospitalized for about 3 weeks..Still recovering..Metastatic Melanoma 3C...Good sized tumor left groin

July 26

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