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Real members of MyMelanomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 6 search results for "Braftovi" in Q&A. To see all results and access other features, sign up for free.

Has Anyone Been Treated With Mektovi/Braftovi Oral Medications? Brian Started Last Night And We're Wondering How Common The Side Effects Are

A MyMelanomaTeam Member asked a question 💭
Seward, AK

Brian has Stage 3b metastatic melanoma with the BRAF mutation, diagnosed August of 2023. Keytruda and the Ipi/Nivo infusions were not effective. His cancer has spread from superficial lesions on his scalp (both removed with clear margins) to the liver. Since August of 2024 it has now spread extensively in the liver as well as to both lungs, an adrenal gland, soft tissue, and several bones. He is an otherwise very healthy 52 year old, tolerates the treatment well but his cancer is still… read more

A MyMelanomaTeam Member

Jennifer and Brian, please study the heck out of Dr. Seyfried. Sooner rather than later. Start with his YouTubes online, then get his main book, or at least some of the smaller/thinner ones that have… read more

Does Anyone Have Experience With Braftovi And Mektovi After Opdualag?

A MyMelanomaTeam Member asked a question 💭
Union, KY

My husband (71) was diagnosed in stage IV about a year ago with all lymph nodes from neck to groin as cancerous plus brain mets. He took 9 immunotherapy treatments and then 5 SRS sessions. His doctor has now stopped the immunotherapy and started him on Braftovi and Mektovi. We’re trying to understand what this means for his cancer journey. His last PET scan showed the tumors shrinking slightly in some area but also growing slightly in other areas. How likely is it that the targeted therapy will… read more

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A MyMelanomaTeam Member

I'm sorry to hear about your husband's diagnosis. Here's some information based on my knowledge base:

Braftovi (Encorafenib) and Mektovi (Binimetinib)
- Braftovi is a kinase inhibitor that targets… read more

Is There Anyone Else Who Is Taking The Targeted Meds Braftovi And Mektovi? I Am Interested In Seeing What Others Have Experienced.

A MyMelanomaTeam Member asked a question 💭
Swedesboro, NJ
A MyMelanomaTeam Member

To connect with others who are taking Braftovi (Encorafenib) and Mektovi (Binimetinib) and to learn about their experiences, you can visit the MyMelanomaTeam website. This platform allows you to join… read more

My Brother Age 67 Has Been Taking Braf But Was Put On Hold Because Of Fever. What Can We Do To Help? Him With Taste Of Food. Nothing Taste

A MyMelanomaTeam Member asked a question 💭
Cedar Rapids, IA
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Stage 4 Melanoma: Survival Rate, What It Looks Like, and More Read Article...
A MyMelanomaTeam Member

I take Braftovi and Mektovi- I actually did not realize this was a side effect. I have noticed taste changes as well, but I thought it was from Covid that I had a couple years ago. It is probably from… read more

My Doctor Has Ordered A BRAF Test On My Tumor. Can Someone Give Me More Information About This Please

A MyMelanomaTeam Member asked a question 💭
Anoka, MN
A MyMelanomaTeam Member

Prayers to all that meed

My Husband Has Malignant Melanoma Stage IV. Suddenly He Is Extremely Tired, And Unsteady On His Feet. He Has Lost Over 10 Lbs In A Month.

A MyMelanomaTeam Member asked a question 💭
Manitowoc, WI

He sleeps alot and lost his appetite. He is 81 yrs old Does it sound like he is entering the final days of his life? Dr stopped Keytruda and is starting a new one. Dr has ordered lots of new blood work and an echo of his heart. Should I prepare myself for his end?

A MyMelanomaTeam Member

Thank you for sharing your son. Very nice